Current Update

Well, the good news is that Caetlin did not have to have a CT scan in connection with her seizures. The neurologist did an EEG, which showed some expected lingering effects of her having had seizures, but nothing that would indicate that she would have seizures except in connection with a fever, which is really great news. They gave us a prescription for a diazepam suppository, which we're to have on hand in the event that she ever has a long lasting seizure or a second seizure, as was the case here, to prevent a seizure cluster. That's pretty uncommon with febrile seizures, so let's hope she doesn't continue to defy the odds and have another cluster anytime soon...or ever. The neurologist seemed to suspect that she might, though, since she still has a couple of years before we can expect her to grow out of the seizures.

The other good news is that they have mostly figured out what is wrong with her. It was a UTI that had spread to her kidneys, and possibly to her blood as well- they are doing labs to confirm that this morning. Even if it hasn't spread, it's still a pretty nasty infection. Fortunately, they have her on a good and effective antibiotic, and it looks to knock it out fairly quickly. "Fairly quickly" unfortunately still means that she will be in the hospital for at least 3 more days, possibly more like 5 if the disease doesn't respond quickly.

Life in the hospital kind of sucks, especially on the sleep front. Caetlin has no kind of schedule, so she was awake until almost midnight tonight, and they are going to come draw blood at around 5 a.m. I hope she can go back to sleep after that, though I am not optimistic. [UPDATE: she completely shocked me by going back to sleep immediately. Woo-hoo!] She's also feeling better enough that, though she is clearly not 100% (query how much of that is because she just can't get any sleep?), she is super bored, tired of sitting in bed, tired of TV. We're going to try some long walks today to wear her out a bit.

We also saw the infectious disease specialist, who spoke to us about her infection and how much it had spread, and he suggested we follow up with the urologist, which I had already planned to do. This is her first (and if I can help it, only) breakthrough infection, since she's been taking the prophylactic antibiotic, but the fact that she's had one, more or less regardless of the severity, would seem to tip the scales toward going ahead and having the corrective surgery for her urinary reflux. The question now is when; obviously not until she is fully recovered from this illness, but then when? Before Segunda? After? My preference would be for before, but that may not be possible. I would then prefer it to be a couple of months after Segunda, if possible, but I guess we'll just have to see.

So that's where we are. More updates as we receive news.

In other minor news, I appear to have the stomach flu, or at least some intestinal bug. Yippee.